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On November 15, 2019, ACL convened a meeting to develop a plan for improving data on individuals with intellectual and developmental disabilities. This report details the meeting: “The Use of Data in Achieving Health Equity for Individuals with Intellectual and Developmental Disabilities: Developing the 2020-2030 Roadmap for Improving Data on Individuals with Intellectual and Developmental Disabilities.” NACDD is proud to be a part of this effort.

In 2017, the Administration for Community Living (ACL) began the ACL Data Restructuring (DR) Project to assess the data hosted on the AGing, Independence, and Disability (AGID) Program Data Portal, and to develop and test a potential restructuring of the data in order to make it useful and usable for stakeholders. ACL is committed to an approach to maximize the use of our data and has invested in the preliminary steps to unify and link our data. We look forward to continuing our work in this area.

From 2019 through 2021 ACL continued its work to review existing ACL and Census datasets; identify practical, efficient, and statistically sound approaches for linking those datasets; create an operational approach that will allow for linking additional datasets in the future; and develop the foundational requirements for the next iteration of the AGID system (AGID 2.0).