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By The Numbers

The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.

State Disability Prevalence Date

Est Total State Disability Population (%): 
11.5%

Est Total State Disability Population (#):   
77,200

Est State Prevalence of Developmental Disabilities (%): 

4.50%

State Waiting Lists for Medicaid HCBS

Number of People with IDD on Medicaid HCBS Waitlist:
0

Number of People with Autism on Medicaid HCBS Waitlist:
N/A

Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
0

Total Number of People in State on Medicaid HCBS Waitlist:
0

State Aging & Disability Network

Number of Area Agencies on Aging/Aging & Disability Resource Centers: 
1

Number of Centers for Independent Living: 
1

Number of Developmental Disability Regions: 
N/A

CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.

CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.

*Not all state data is available or is N/A

Projects

The DC Bridging Aging and Disability Networks Project continues the learning and systems change efforts that have been in progress over the last 10+ years to support families, facilitate cross-agency coordination, and engage all DC residents in building fair and user-friendly disability and aging services and supports. Its objectives are to:

A simple line drawing of a person sitting in a wheelchair, inside a house outline, with a heart symbol above the wheelchair, representing care and support for individuals with disabilities.

Goal 1

Better support individuals with disabilities to maintain dignity and optimal independence as they age.

An illustration showing a handshake in the center, surrounded by circular icons of three people, with arrows indicating collaboration and connection among individuals.

Goal 2

Better support and connect with aging caregivers, such as through family and paid caregivers like Direct Support Professionals (DSPs) and Home Health Aides (HHAs).

A graphic featuring interconnected circles with depictions of people inside them, symbolizing a network of relationships and community connections.

Goal 3

Build capacity for broad community engagement across aging and disability networks.

A graphic illustration depicting two hands shaking in agreement. Below the handshake, three stylized person icons are connected by a line, symbolizing collaboration or partnership. The illustration is outlined in teal color.

Goal 4

Build sustainable relationships between aging and disability service networks.

Highlights/Milestones Achieved

  • Trained 10 people to support families as Future Planning Navigators. 
  • Modified The Arc’s Future Planning curriculum to be specific to Washington, DC, and trained people in positions that have regular direct contact with people with disabilities and their families.
  • Collaborated with DC Supporting Families Community of Practice to support caregivers through a three-part series on self-care, community supports, and advocacy.
  • Hosted screening among disability and aging stakeholders of the documentary, “Unseen: How We’re Failing Parent Caregivers and Why It Matters.”
  • Hosted a Future Planning Lunch and Learn Series addressing an overview of disability and aging services in DC, financial options, and legal decision-making options to plan for the future. View the series here. 
  • Hosted a Virtual Aging and Disability Panel Discussion and Community Listening Session.
  • Hosted an Aging and Disability Professionals Networking event.

Key Resources Developed

State Co-Leads

Alison Whyte

Executive Director

DC Developmental Disabilities Council

Vacant

Department Disability Services (DDS)

State Alliance Teams

  • Developmental Disabilities Council (DDC) – Co-lead 
  • Department of Disability Services (DDS) – Co-lead 
  • Department of Aging and Community Living (DACL) 
  • Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD) 
  • Disability Rights DC at University Legal Services (DRDC) 
  • Project ACTION! (DC’s self-advocacy coalition)
  • Quality Trust for Individuals with Disabilities (includes Family Ties of DC, DC’s Parent to Parent chapter)
  • RCM of Washington (disability service provider)
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