By The Numbers

The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.

State Disability Prevalence Date

Est Total State Disability Population (%): 
17.5%

Est Total State Disability Population (#):   
699,500

Est State Prevalence of Developmental Disabilities (%): 

7.20%

State Waiting Lists for Medicaid HCBS

Number of People with IDD on Medicaid HCBS Waitlist:
1,763

Number of People with Autism on Medicaid HCBS Waitlist:
N/A

Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
0

Total Number of People in State on Medicaid HCBS Waitlist:
1,763

State Aging & Disability Network

Number of Area Agencies on Aging/Aging & Disability Resource Centers: 
11

Number of Centers for Independent Living: 
4

Number of Developmental Disability Regions: 
N/A

CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.

CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.

*Not all state data is available or is N/A

Projects

Oklahoma’s State Alliance Team (OK-SAT) is focused on embedding the principles of empowerment throughout the lifespan. Our commitment is to actively ensure that every Oklahoman, particularly those with developmental disabilities and their families, genuinely has their voice heard and respected. This includes a concerted effort to educate our communities on the full spectrum of options beyond traditional guardianship, fostering independence.

Oklahoma’s SAT goals include:

Image of a clipboard with lines indicating a list and icons of people and a clock. This represents task management, scheduling, or team coordination.

Goal 1

Integrating more futures and goal planning into the Developmental Disabilities Services (DDS) Individual Plan (IP)

Image of a computer window with an upward arrow. This symbolizes website expansion, growth in digital space, or user interaction with technology.

Goal 2

Creating an informative website for families, people with developmental disabilities, and professionals to gather information about the alternatives to guardianship. This includes developing an informational training that SAT members can deliver to community partners.

Image of multiple hands coming together in a unified gesture. This signifies teamwork, collaboration, or community solidarity.

Goal 3

Developing informational materials to better inform DDS and Aging networks on the services and supports each program offers to ensure a well-rounded support system for families.

A flowchart diagram featuring interconnected elements, including a gear icon on the left, various rectangular boxes depicting processes, arrows indicating direction, and a checkmark symbol on the right, suggesting a sequence of steps leading to a successful outcome.

Goal 4

Developing a self-guided online learning module that covers the continuum of decision-making for families, people with disabilities, and petitioners for guardianship to better inform them on guardianship and alternative options.

Highlights/Milestones Achieved

  • Reviewed and suggested changes to the Developmental Disabilities Services (DDS) individual plan (IP) to include more futures and goal planning, along with tips and links for more information. These changes are approved and are being integrated into the IP. 
  • Creation of an informational website called Continuum of Decision Making: Alternatives to Guardianship. This website provides information and resources about alternatives to guardianship:  https://okcares.org/guardianship/
  • Begin discussions about potential legislation to improve a petitioner’s knowledge of the alternatives before guardianship and the continuum of decision-making before they petition for guardianship is sought. 
  • Development of a self-paced online learning module that informs on the continuum of decision-making.
  • The SAT team currently includes family members, persons with developmental disabilities, service professionals, and tribal populations.

Testimonials

“As the Director of Legal Empowerment for the Oklahoma Access to Justice Foundation, it is my duty and honor to empower Oklahomans, especially those who are vulnerable and overlooked, to meaningfully participate in the civil justice system. It is integral that this community-individuals with intellectual and developmental disabilities, their caregivers, and loved ones, are aware that they can curate a legal plan tailored to the strengths and limitations of the aging individual without stripping them of all legal rights with a general guardianship. It is also imperative that they are informed of their legal rights and options in plain language and have timely, verified, and vetted resources readily available. It has been a highlight of the past year to enthusiastically participate in this collective of dedicated and impressive organizations, agencies, and families.”

– Tiffani Armendariz, Director of Legal Empowerment, Oklahoma Access to Justice Foundation

“This partnership is a critical lifeline, making aging with intellectual and developmental disabilities in Oklahoma easier to navigate. Together, we are enhancing access to services across the lifespan for individuals and their dedicated caregivers.”

– Talena M. Ford, Community Engagement & Coalitions, Community Living, Aging, and Protective Services, OKDHS

“Oklahoma’s dedication to the Bridging Aging and DD Networks grant is a testament to our commitment to fostering inclusive communities for families across the lifespan. This work has been possible through the exceptional team collaboration we’ve developed. Our diverse group of agencies and passionate individuals has truly come together, breaking down silos and building a cohesive front. By strengthening the ties within our aging and disability networks, we are building a more seamless and supportive system for all Oklahomans, ensuring every individual can age with dignity and access the resources they need.”

– Jenifer Randle, Executive Director, Developmental Disabilities Council of Oklahoma

State Co-Leads

Miranda Hutchison

Programs Administrator

Developmental Disabilities Services (OKDHS)

Jenifer Randle

Executive Director

Developmental Disabilities Council of Oklahoma

State Alliance Teams

Tiffani Armendariz

Director of Legal Empowerment

Oklahoma Access to Justice Foundation

 

Mat Bisbee

Indian Health Services

 

Dee Blose

Family Member

 

Wanda Felty

Assistant Director

Center for Learning and Leadership/UCEDD

 

Jennifer Jones

Director

Center for Developmental Disabilities, Oklahoma State University

 

Aaliyah Mobley

Child Welfare Specialist

Child Welfare, OKDHS

 

Jarvis Rolfe

Person with Lived Experience

 

Marshell SourJohn

AARP

Samantha Basave

Statewide Sibling Support Coordinator

Sooner SUCCESS

 

David Blose

Family Member

 

Amanda Dirmeyer

CEO

Daily Living Centers

 

Talena Ford

Community Engagement & Coalitions

Community Living, Aging, and Protective Services, OKDHS

 

Kimberly Krise

Waitlist Manager

Liberty of Oklahoma

 

Jennifer Robinson

Planning & Grants Director

Developmental Disabilities Council of Oklahoma

 

Ruth Rolfe

Family Member

 

Jennifer Tall Bear

Community Justice Worker

Oklahoma Indian Legal Services