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By The Numbers

The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.

State Disability Prevalence Date

Est Total State Disability Population (%): 
12.5%

Est Total State Disability Population (#):   
96,500

Est State Prevalence of Developmental Disabilities (%): 

5.30%

State Waiting Lists for Medicaid HCBS

Number of People with IDD on Medicaid HCBS Waitlist:
0

Number of People with Autism on Medicaid HCBS Waitlist:
141

Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
0

Total Number of People in State on Medicaid HCBS Waitlist:
141

State Aging & Disability Network

Number of Area Agencies on Aging/Aging & Disability Resource Centers: 
N/A

Number of Centers for Independent Living: 
4

Number of Developmental Disability Regions: 
8

CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.

CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.

*Not all state data is available or is N/A

Projects

Icon of an open book with a globe in the center and speech bubbles showing different languages, representing global communication and education.

Goal 1

Translate Aging Services materials to languages of key populations in the state (Ukrainian, Spanish, Swahili).

Icon illustrating a winding path with a location marker and a flag, signifying navigation or journey planning.

Goal 2

Identify and create roadmaps for helping individuals with I/DD and their caregivers navigate various systems and resources, based on the top 14 common questions relevant to aging individuals with I/DD and their families.

Highlights/Milestones Achieved

  • Translated Aging Services FAQ sheets into three languages. 
  • Ran an Aging Disability Resource Link (ADRL) commercial across the Good Health TV system to increase calls to the line. 
  • Completed one Disability Roadmap with a goal of 14. These will be posted on this page as they are finalized in 2025-2026.

Key Resources Developed

The NDSCDD is part of a state team that is focused on bridging the divide between aging and disability.  

Infographic titled "Living Local Network" from the North Dakota State Council on Developmental Disabilities covering the period from October 1 to October 31, 2024. It includes an airline summary indicating that a video on developmental disabilities was shared, supported by KAT & Company. Key statistics shown include paid airtime for 60-second segments on two dates: October 1 (6 plays on each of the 126 programs) and October 30 (6 plays on each of the 126 programs). Additionally, bonus airtime statistics list 1 play on October 10 and 10 plays on October 30 across the same programs. The total reach is listed as 17,388 total plays across all platforms during the month. The footer states the infographic is produced by KAT & Company and dated October 31, 2024.

State Co-Leads

Julianne Horntvedt

Executive Director

North Dakota State Council on Developmental Disabilities

 

Hilory Liccini

Executive Director

North Dakota State Center for Persons with Disabilities

Veronica Zieta

Executive Director

North Dakota Protection and Advocacy Project

State Alliance Teams

  • North Dakota Protection and Advocacy Project  
  • Angela Dinius, Executive Director, North Dakota Association of Community Providers  
  • Kirsten Dvorak, Executive Director, ARC of North Dakota  
  • Kirsten Dvorak, Executive Director, ARC of Bismarck  
  • Scott Burlingame, Executive Director, Independence, Inc. (Center for Independent Living)  
  • Sheryl Beard, President, Advocates Leading their Lives (ALL) Statewide Self-Advocacy Group  
  • Donene Feist, Executive Director, Family Voices of North Dakota  
  • Tina Bay, Developmental Disability Director, Department of Health and Human Services  
  • Kayla Trzpuc, Human Services Program Admin IV, Money Follows the Person Project, Aging Services Division  
  • Jeff Anderson, Executive Director, ARC of Cass County 
  • Jorden Laducer-Dix, Special Populations Coordinator, Department of Health and Human Services
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