By The Numbers
The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.
State Disability Prevalence Date
Est Total State Disability Population (%):
13.0%
Est Total State Disability Population (#):
2,527,200
Est State Prevalence of Developmental Disabilities (%):
State Waiting Lists for Medicaid HCBS
Number of People with IDD on Medicaid HCBS Waitlist:
0
Number of People with Autism on Medicaid HCBS Waitlist:
N/A
Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
0
Total Number of People in State on Medicaid HCBS Waitlist:
867
State Aging & Disability Network
Number of Area Agencies on Aging/Aging & Disability Resource Centers:
62
Number of Centers for Independent Living:
15
Number of Developmental Disability Regions:
13
CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.
CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.
*Not all state data is available or is N/A
Projects
Goal 1
Increase the awareness and community integration of people with developmental disabilities (DD) who are aging. This goal was determined by a statewide needs assessment, numerous discussions with SAT members, and the personal experiences of self-advocate members of the State Alliance Team (SAT).
Highlights/Milestones Achieved
During Year One, the New York State Council on Developmental Disabilities (CDD) distributed a statewide needs assessment to determine the most significant challenges that people with developmental disabilities (DD) who are aging face on a regular basis. The needs assessment was in the form of an online survey that was available in English, Spanish, and Chinese.
Based on the survey results, the NY SAT decided to focus on the goal to increase awareness and community integration of people with DD who are aging.
The NY SAT is currently developing a short training video for community center staff and volunteers in hopes of achieving this goal. This idea came from the personal experiences of the self-advocate members of the SAT.
The NY SAT sent out a survey titled “Improving the Lives of Aging New Yorkers with Developmental Disabilities” to understand how New York can better support aging people with disabilities. The survey received 1,005 responses, with 60% being family members or caregivers of a person with DD. Some key findings include:
State Co-Leads
Jennifer Goldman
Federal Liaison
NYS Council on Developmental Disabilities (CDD)
Kimberly Berg
Program Planner
NYS Council on Developmental Disabilities (CDD)
State Alliance Teams
Jennifer Goldman
Federal Liaison
NYS Council on Developmental Disabilities (CDD)
Kimberly Berg
Program Planner
NYS Council on Developmental Disabilities (CDD)
Naome Adam
Self-Advocate
NYS Council on Developmental Disabilities (CDD)
Colleen Scott
State Agency Rep
NYS Office for the Aging (NYSOFA)
Nancy Shea
Organization Rep
Care Design
Bin Feng
Parent/Organization Rep
Project Ready
Elizabeth Vasquez
Organization Rep
Center for the Elimination of Minority Health Disparities, UAlbany
Janine Belfast
UCEDD
Westchester Institute for Human Development
Cynthia Stewart
State Agency Rep
NYS Office for New Americans (ONA)
Danielle Lanzetta
Self-Advocate
Self-Advocacy Association of NYS
Stuart Flaum
Family Member
NYS Council on Developmental Disabilities (CDD)
Becky Preve
Organization Rep
Association on Aging in New York
Kristin Proud
Executive Director
NYS Council on Developmental Disabilities (CDD)
Jackie Hayes
Program Planner
NYS Council on Developmental Disabilities (CDD)
Rachel Baker
State Agency Rep
NYS Office for People with Developmental Disabilities (OPWDD)
Lindsay Miller
Organization Rep
New York Association on Independent Living
Patricia Chapman
Organization Rep
Care Design
Adella Lin-Kravitz
Parent/Organization Rep
Project Ready
Kimberly Weisbeck
P&A
Disability Rights New York
David McAdam
UCEDD
Strong Center for Developmental Disabilities
Joanne Siegel
UCEDD
Rose F. Kennedy
Katy Faivre
Family Member
NYS Council on Developmental Disabilities (CDD)
Laura Robinson
Organization Rep
University of Rochester Medical Center