By The Numbers
The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.
State Disability Prevalence Date
Est Total State Disability Population (%):
14.7%
Est Total State Disability Population (#):
1,461,500
Est State Prevalence of Developmental Disabilities (%):
State Waiting Lists for Medicaid HCBS
Number of People with IDD on Medicaid HCBS Waitlist:
27
Number of People with Autism on Medicaid HCBS Waitlist:
2,192
Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
0
Total Number of People in State on Medicaid HCBS Waitlist:
2,563
State Aging & Disability Network
Number of Area Agencies on Aging/Aging & Disability Resource Centers:
16
Number of Centers for Independent Living:
13
Number of Developmental Disability Regions:
N/A
CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.
CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.
*Not all state data is available or is N/A
Projects
Goal 1
Develop a collaborative infrastructure between the disability and aging networks in Michigan.
Goal 2
Support aging people with developmental disabilities and their family members in having access to the tools they need to navigate life.
Highlights/Milestones Achieved
- Scheduled regular member check-ins and resource sharing during and in between SAT meetings to increase understanding and awareness of programs and services.
- Piloted cross-training on aging & disability resources (and systems) to aging and disability networks (including providers and care coordination/ case management staff). Feedback from the pilot is being incorporated, and cross-training will roll out statewide by early 2026.
- Created a preliminary landscape analysis reviewing strategic plans across various state agencies (aging, developmental disabilities, and independent living) and identifying overlaps, linkages, and gaps as they relate to services and supports for aging adults with I/DD.
- Supported a statewide Person-Centered Options Counseling system and a long-term supports and services (LTSS) awareness campaign to help create a more inclusive and comprehensive resource for multiple audiences.
- Efforts initiated to adapt the Most Valuable Providers (MVP) Training for use with staff from area agencies on aging and Older Americans Act Title VI (Tribal) grantees.
Key Resources Developed
Most Valuable Providers (MVP) – Michigan Developmental Disabilities Institute
The existing MVP training, designed to help improve access to essential health care services for people with I/DD, is being adapted with a module specifically for area agencies on aging and Older Americans Act Title VI Tribal grantees.
Future Planning for Aging Caregivers (FPAC) – Wayne State University
The FPAC project intends to help families plan and provide for the long-term financial and daily needs of their family member(s) with an I/DD through the assistance of Family Support Navigators and by using an innovative and easy-to-use app. BADN Co-Leads and several SAT members are members of the Advisory Committee.
Findings
- The language across the aging & disability sectors is different and often needs translation of acronyms, services, terminology, and programs for our common stakeholders (and especially individuals with I/DD who are eligible for services across both systems).
- There is no natural transition into aging services for people with developmental disabilities, regardless of Medicaid & Medicare or state program eligibility.
State Co-Leads
Tedra Jackson
Deputy Director
Michigan Developmental Disabilities Council (MiDDC)
Tammy Lemmer
State Assistant Administrator
Bureau of Aging, Community Living, and Supports, Michigan Department of Health and Human Services
State Alliance Teams
Darlene Heard-Thomas
Community Advocate
Arc of Western Wayne
Steve Johnson
Lived Experience (Parent)
Sheryl Kuenzer
Lived Experience
Jan Lampman
Lived Experience (Sibling)
Supporting Families Community of Practice
Steve Locke
Executive Director
MI State Independent Living Council (MISILC)
Yesenia Murillo
Section Manager
MDHHS Office of Culture, Community, Education, and Leadership
Katie Pierce
Program Director
Alzheimer’s Association of Michigan
Michelle Roberts
Executive Director
Disability Rights Michigan
Barb Valliere
Lived Experience
Vacant
MDHHS Division of Adult Home and Community-Based Services
Curtis Johnson
DEI Coordinator
Health Promotion and Active Aging Section, MDHHS
Todd Koopmans
Lived Experience
Lori Kunkel
Project Manager
Great Flint Health Coalition
Christine (Chris) Lerchen
Lived Experience (Parent)
Sharon Milberger
Director
Michigan Developmental Disabilities Institute
Aimee Page
Chief Clinical Officer
AgeWays (AAA region 1-B)
Rachel Richards
Guardianship Diversion Project Co-Coordinator
Michigan Elder Justice Initiative
Aimee Sterk
Manager
Michigan Assistive Technology Program, Michigan Disability Rights Coalition
Isabelle Welsh
Departmental Specialist
MDHHS Tribal Government Services & Policy