By The Numbers
The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.
State Disability Prevalence Date
Est Total State Disability Population (%):
14.4%
Est Total State Disability Population (#):
204,700
Est State Prevalence of Developmental Disabilities (%):
State Waiting Lists for Medicaid HCBS
Number of People with IDD on Medicaid HCBS Waitlist:
0
Number of People with Autism on Medicaid HCBS Waitlist:
N/A
Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
N/A
Total Number of People in State on Medicaid HCBS Waitlist:
0
State Aging & Disability Network
Number of Area Agencies on Aging/Aging & Disability Resource Centers:
5
Number of Centers for Independent Living:
2
Number of Developmental Disability Regions:
N/A
CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.
CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.
*Not all state data is available or is N/A
Projects
Hawai’i’s State Alliance Team (SAT) focused on areas that would benefit both the aging and IDD communities. The goals included:
Goal 1
Create a fridge magnet that puts the Hawai’i Aging and Disability Resource Center (ADRC) as the main contact for resources and an updated website.
Goal 2
Increase the Direct Support Professional (DSP) workforce by developing a high school internship program to try and increase the DSP workforce.
Goal 3
Provide education and training to community members, doctors, nurses, caregivers, and parents on dementia and IDD.
Goal 4
Develop an All About Me information guide for emergency preparedness that includes a functional needs list that includes shelters where equipment and supports that are needed are provided.
Goal 5
Smart911- We have been working at the county and state level to have SMART911 implemented across all counties. We are working with a local media company to promote Smart911 to get people signed up for it.
Goal 6
Partnering with Alzheimer’s Association for Alzheimer’s Awareness month– We have held 2 brain health fairs with the Alzheimer’s Association to promote brain health across all ages, seniors, and individuals with IDD.
Goal 7
Kupuna and Disability Resource Fairs were held in 2025 across the state to provide networking opportunities to senior and disability related agencies, to provide resources to the aging disability population, and bring together agencies that may not have worked with people who have a disability previously. Also to share information through mini presentations on ABLE Accounts, Dementia, and Alternatives to Guardianship, including supported decision making.
Highlights/Milestones Achieved
- Provided a two-day training with the National Task Group on Dementia Care that also included a third day of training for people who wanted to become trainers.
- Developed the Hawai’i Guidebook on Dementia and I/DD, which is translated into Ilocano.
- Distributed over 1,500 ADRC fridge magnets that include art from an individual with I/DD.
- Created and implemented a high school internship program that offered students a minimum of 60 hours of hands-on experience at an adult day health program. Hawai’i’s SAT is currently working on making it sustainable by partnering with the Department of Education’s Career Pathways Programs.
- Hosting Kupuna and Disability Resource Fairs across the state.
- Building a new relationship with the Alzheimer’s Association by providing educational mini-talks and informational resources that focus on the aging population, as well as on the disability section.
State Co-Leads
Daintry Bartoldus
Executive Director
Hawai’i State Council on Developmental Disabilities
Amelia Kyewich-Kaneholani
Program Specialist
Hawai’i State Council on Developmental Disabilities
State Alliance Teams
Timothy Renken
Self-Advocate and Chair
Self-Advocacy Advisory Council
Tani Salazar
Alzheimer’s Disease & Related Dementias Services Coordinator
Executive Office on Aging
Melissa Gibo
Vice President of Programs
Lanakila Pacific
Diane Terada
Division Administrator
Catholic Charities Hawai’i
Kiriko Takahashi
Interim Director – Center on Disability Studies
University of Hawai’i at Manoa
Nicole Shlaack
Evaluation Manager – Center on Disability Studies
University of Hawai’i at Manoa
Mary Brogan
Administrator
Hawai’i Department of Health’s Developmental Disabilities Division
Cristina Valenzuela
Legal Services Developer
Executive Office on Aging
Jody Mishan
Program Coordinator – Alzheimer’s Disease Programs Initiative
Catholic Charities Hawai’i
Caroline Cadirao
Director
Executive Office on Aging
Louis Erteschik
Executive Director
Hawai’i Disability Rights Center
Dr. Kealohaku’ualohaku’upoki’i (Poki’i) Balaz
DNP, EMBA, APRN, Health and Aging Policy Fellow,
American Political Science Association Congressional Fellow