By The Numbers
The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.
State Disability Prevalence Date
Est Total State Disability Population (%):
11.7%
Est Total State Disability Population (#):
4,532,300
Est State Prevalence of Developmental Disabilities (%):
State Waiting Lists for Medicaid HCBS
Number of People with IDD on Medicaid HCBS Waitlist:
0
Number of People with Autism on Medicaid HCBS Waitlist:
N/A
Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
12,904
Total Number of People in State on Medicaid HCBS Waitlist:
18,245
State Aging & Disability Network
Number of Area Agencies on Aging/Aging & Disability Resource Centers:
33
Number of Centers for Independent Living:
27
Number of Developmental Disability Regions:
21
CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.
CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.
*Not all state data is available or is N/A
Projects
The California State Alliance Team (SAT) worked towards three primary overarching goals:
Goal 1
Establish a statewide community of practice with the mission to bridge intellectual and developmental disabilities (I/DD) and aging networks to support aging individuals with I/DD and their caregivers. The focus is on establishing a SAT with various knowledge, expertise, and commitment to bridge I/DD and aging networks.
Goal 2
Increase the availability of culturally and linguistically responsive services, resources, and supports for older adults with I/DD and their caregivers. Leverage existing resources and increase collaboration via culturally and linguistically responsive cross-training at the local level.
Goal 3
Increase the availability of future planning services and supports for aging people with I/DD and their caregivers. Create an inventory of culturally and linguistically responsive tools, best practices, and resources for future planning.
Highlights/Milestones Achieved
Creation of a Common Terminology Guide
The California State Alliance Team has developed a “Common Terminology” guide. Terminology establishes the precedence of policy and program practices. This is especially critical given that a primary goal of policy is to convey important information concisely and in a clear manner. While this remains a consistent practice in laws and regulations, there is often a need to identify common terminology within “Communities of Practice” that are relied upon to pilot emerging models and best practices. The California SAT identified the need to develop this terminology inventory within the goal of increasing access to age-related services and supports for aging individuals with I/DD and their caregivers. Currently in draft, the terminology inventory serves as a best practice resource for processes, program structures, and policies.
Addition of Aging-Related Questions and Prompts in Statewide IPP Template
The California Department of Developmental Services serves more than 450,000 individuals. California developed a new statewide, standardized Individual Program Plan (IPP) template and accompanying Service Coordinator Guide, which includes proactive approaches in addressing supports and future planning for individuals and their caregivers as they age. All Service Coordinators from the 21 Regional Centers across California are required to use this person-centered template and guide.
Incentivizing Aging Projects at Regional Centers
The California Department of Developmental Services incentivized Aging Projects at the Regional Centers[1]. California’s Community Placement Plan (CPP) and Community Resource Development Plan (CRDP) for Fiscal Year 2024-2025 developed priorities that included meeting individual and community needs of older adults with I/DD.
Aging Inclusion Resources
- The Department of Developmental Services (DDS) launched the Aging Inclusion Resources webpage on its website.
- This page serves as a hub for people supported, their caregivers, and professionals to find resources for services and supports. This page will continue to grow through the work of the State Alliance Team.
State Co-Leads
Alison Giannini
Aging Services Branch Manager
Department of Developmental Services
Tanya Bautista
Policy Chief
California Department of Aging
State Alliance Teams
- Agency on Aging Area 4
- Alta California Regional Center, representing the Association of Regional Center Agencies (ARCA)
- Alzheimer’s Association, Northern California and Northern Nevada Chapter
- California Association of Area Agencies on Aging (C4A)
- California Department of Aging
- California Department of Developmental Services
- California Department of Rehabilitation
- California Foundation for Independent Living Centers
- California State Council on Developmental Disabilities
- Chinese Parent Association for the Disabled
- Disability Rights California
- The Arc of California/El Arc de California
- University Center of Excellence on Developmental Disability, Director Chief, Division of General Pediatrics at Children’s Hospital Los Angeles, and USC Associate Professor of Clinical Pediatrics
- University of Southern California (USC) Family Caregiver Support Center/Los Angeles Caregiver Center (LAACRC)
- USC Research Associate Professor of Gerontology, and USC Assistant Dean of Diversity and Inclusion