By The Numbers
The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.
State Disability Prevalence Date
Est Total State Disability Population (%):
14.0%
Est Total State Disability Population (#):
1,025,800
Est State Prevalence of Developmental Disabilities (%):
State Waiting Lists for Medicaid HCBS
Number of People with IDD on Medicaid HCBS Waitlist:
0
Number of People with Autism on Medicaid HCBS Waitlist:
N/A
Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
0
Total Number of People in State on Medicaid HCBS Waitlist:
0
State Aging & Disability Network
Number of Area Agencies on Aging/Aging & Disability Resource Centers:
8
Number of Centers for Independent Living:
5
Number of Developmental Disability Regions:
6
CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.
CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.
*Not all state data is available or is N/A
Projects

Goal 1 – Equitable Access to Care
Identify and propose improvements to accommodate the variety of healthcare challenges encountered by individuals with disabilities as they enter elderhood. These challenges include care transition, accessibility, clinical expertise, adequacy of healthcare systems in varying locales, and community-based support, among others.

Goal 2 – Technology Access & Safety
Identify technological supports to assist aging individuals with I/DD who have mobility, habilitation, and other needs, as well as technology that aids in communication; expand community inclusion and engagement with others, thereby reducing or preventing loneliness and isolation; and promote access to resources that promote self-determination and well-being. Work will include identifying safety measures to protect against online abuse and exploitation.

Goal 3 – Residential Transition
Address the physical, emotional, service, and other needs of individuals transitioning from a family home or independent living setting, including subsidized affordable housing or other longtime residential setting, to a group home, assisted living facility, or similar congregate setting due to a need for increased accommodations related to aging, medical necessity, loss of a caregiver, provider change, or other relevant issues, with the intent to maintain independence for as long as possible and prevent homelessness of elder individuals with I/DD.

Goal 4 – Future Planning
Focus on identifying, developing (if necessary), and disseminating inclusive, accessible tools and resources to support effective future planning for adults with I/DD and to ensure all relevant parties in an individual’s life are aware of that individual’s desires and directives for their elder years. May include resources related to planning for healthcare, finances, education, employment, housing, community engagement, and/or a variety of other aspects of life in later years. May also focus on identifying individuals with limited or no existing support systems who will require a stronger “community” as part of their future planning.
Highlights/Milestones Achieved
- Pursuing the designation of Arizona as a Technology First state.
- Utilizing TA assistance to conduct site visits in Kansas and Tennessee with the aim of expanding knowledge of Enabling Technology resources that may be applicable to Arizona’s DD service system.
- Multiple community presentations on Future Planning and Accessible Healthcare for aging individuals with I/DD at conferences, seminars, and webinars.
- Gathering stories on lived experiences related to provider biases and accessibility in three areas: Primary Care Providers, Emergency Room Visits and End-of-Life Care. Currently determining the best prompting questions to start the conversations with individuals with disabilities to gather these stories.
- Continue to create a presentation on removing the biases in healthcare with a focus audience of healthcare providers.
Key Resources Developed
State Co-Leads
Jon Meyers
Executive Director
Arizona Developmental Disabilities Planning Council
Nicole Palomino
Specialty Manager – CARES Administration
Arizona Dept. of Economic Security-Division of Developmental Disabilities
State Alliance Teams
Mellie Adu
State Administrator
Arizona Statewide Independent Living Council
David Carey
Disability Justice Educator
Arizona Statewide Independent Living Council
Jacy Farkas
Executive Director
Sonoran Center for Excellence in Disabilities
Jon Meyers
Executive Director
Arizona Developmental Disabilities Planning Council
Gabriela Orozco
Family Care Consultant
Ideal Care LLC
Nicole Palomino
Specialty Manager
DES-Division of Developmental Disabilities
J.J. Rico
Executive Director
Arizona Center for Disability Law
Yumi Shirai
Associate Professor
Sonoran Center for Excellence in Disabilities
Mary Slaughter
Council Member
Arizona Developmental Disabilities Planning Council
Ruth-Ann Strom
Executive Director
The Arc of Tempe
Lindsey Bankhead
Program Administrator
DES-Division of Aging & Adult Services
Claudia Cuellar
Community Volunteer
Clayton Guffey
Program Manager
Arizona Technology Access Program (AzTAP)
Melanie Mills
Executive Director
The Arc of Arizona
Kelli O’Toole
CEO
The Opportunity Tree
Ashley Pascual
Bureau Chief
DES-Division of Aging & Adult Services
Kelly Roberts
Director
Institute for Human Development – NAU
Rana Simms
Deputy Assistant Director
DES-Division of Aging & Adult Services
Sierra Smith
Supported Aging Supervisor
The Opportunity Tree
