By The Numbers

The data below provides a snapshot of the state’s population of people with I/DD and older Americans, Home and Community Based Services (HCBS) Waitlists, and the collective impact of the BADN collaboration.

State Disability Prevalence Date

Est Total State Disability Population (%): 
14.0%

Est Total State Disability Population (#):   
1,025,800

Est State Prevalence of Developmental Disabilities (%): 

6.50%

State Waiting Lists for Medicaid HCBS

Number of People with IDD on Medicaid HCBS Waitlist:
0

Number of People with Autism on Medicaid HCBS Waitlist:
N/A

Number of People who are Seniors and/or have Physical Disabilities on Medicaid HCBS Waitlist:
0

Total Number of People in State on Medicaid HCBS Waitlist:
0

State Aging & Disability Network

Number of Area Agencies on Aging/Aging & Disability Resource Centers: 
8

Number of Centers for Independent Living: 
5

Number of Developmental Disability Regions: 
6

CITATION FOR COLUMN 1 DATA: The percentage of non-institutionalized males or females with any disability (all ages; 65+), cognitive disability (all ages; 65+), all races, regardless of ethnicity, across all levels of education in the United States. American Community Survey, 2023. Click here to view the source.
CITATION FOR COLUMN 1 DATA: Centers for Disease Control and Prevention. “Developmental Disability, Estimated Prevalence of Developmental Delay, All States, 2021-22. National Environmental Public Health Tracking Network. Click here to view the source.

CITATION FOR COLUMN 2 DATA: Kaiser Family Foundation. “Number of People Waiting for Medicaid Home Care (HCBS), by Target Population and Whether States Screen for Eligibility, 2024”. Click here to view the source.

*Not all state data is available or is N/A

Projects

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Goal 1 – Equitable Access to Care

Identify and propose improvements to accommodate the variety of healthcare challenges encountered by individuals with disabilities as they enter elderhood. These challenges include care transition, accessibility, clinical expertise, adequacy of healthcare systems in varying locales, and community-based support, among others.

Image of a computer monitor displaying lines of code, accompanied by a shield featuring a padlock, illustrating cybersecurity or data protection.

Goal 2 – Technology Access & Safety

Identify technological supports to assist aging individuals with I/DD who have mobility, habilitation, and other needs, as well as technology that aids in communication; expand community inclusion and engagement with others, thereby reducing or preventing loneliness and isolation; and promote access to resources that promote self-determination and well-being. Work will include identifying safety measures to protect against online abuse and exploitation.

An outline of a house with a triangular roof, window, and door, representing home and residential concepts.

Goal 3 – Residential Transition

Address the physical, emotional, service, and other needs of individuals transitioning from a family home or independent living setting, including subsidized affordable housing or other longtime residential setting, to a group home, assisted living facility, or similar congregate setting due to a need for increased accommodations related to aging, medical necessity, loss of a caregiver, provider change, or other relevant issues, with the intent to maintain independence for as long as possible and prevent homelessness of elder individuals with I/DD.

An icon showing a clipboard with checkmarks and a target with an arrow, illustrating task completion and goal setting.

Goal 4 – Future Planning

Focus on identifying, developing (if necessary), and disseminating inclusive, accessible tools and resources to support effective future planning for adults with I/DD and to ensure all relevant parties in an individual’s life are aware of that individual’s desires and directives for their elder years. May include resources related to planning for healthcare, finances, education, employment, housing, community engagement, and/or a variety of other aspects of life in later years. May also focus on identifying individuals with limited or no existing support systems who will require a stronger “community” as part of their future planning.

Highlights/Milestones Achieved

  • Pursuing the designation of Arizona as a Technology First state.
  • Utilizing TA assistance to conduct site visits in Kansas and Tennessee with the aim of expanding knowledge of Enabling Technology resources that may be applicable to Arizona’s DD service system.
  • Multiple community presentations on Future Planning and Accessible Healthcare for aging individuals with I/DD at conferences, seminars, and webinars.
  • Gathering stories on lived experiences related to provider biases and accessibility in three areas: Primary Care Providers, Emergency Room Visits and End-of-Life Care. Currently determining the best prompting questions to start the conversations with individuals with disabilities to gather these stories.
  • Continue to create a presentation on removing the biases in healthcare with a focus audience of healthcare providers.

Key Resources Developed

State Co-Leads

Jon Meyers

Executive Director

Arizona Developmental Disabilities Planning Council

Nicole Palomino

Specialty Manager – CARES Administration

Arizona Dept. of Economic Security-Division of Developmental Disabilities

State Alliance Teams

Mellie Adu

State Administrator

Arizona Statewide Independent Living Council

 

David Carey

Disability Justice Educator

Arizona Statewide Independent Living Council

 

Jacy Farkas

Executive Director

Sonoran Center for Excellence in Disabilities

 

Jon Meyers

Executive Director

Arizona Developmental Disabilities Planning Council

 

Gabriela Orozco

Family Care Consultant

Ideal Care LLC

 

Nicole Palomino

Specialty Manager

DES-Division of Developmental Disabilities

 

J.J. Rico

Executive Director

Arizona Center for Disability Law

 

Yumi Shirai

Associate Professor

Sonoran Center for Excellence in Disabilities

 

Mary Slaughter

Council Member

Arizona Developmental Disabilities Planning Council

 

Ruth-Ann Strom

Executive Director

The Arc of Tempe

Lindsey Bankhead

Program Administrator

DES-Division of Aging & Adult Services

 

Claudia Cuellar

Community Volunteer

 

Clayton Guffey

Program Manager

Arizona Technology Access Program (AzTAP)

 

Melanie Mills

Executive Director

The Arc of Arizona

 

Kelli O’Toole

CEO

The Opportunity Tree

 

Ashley Pascual

Bureau Chief

DES-Division of Aging & Adult Services

 

Kelly Roberts

Director

Institute for Human Development – NAU

 

Rana Simms

Deputy Assistant Director

DES-Division of Aging & Adult Services

 

Sierra Smith

Supported Aging Supervisor

The Opportunity Tree